Clinical Trial

This is where I am at this point.

I am up to be picked for a clinical trial, which entails being examined all over again.

More blood taken today, an EKG, another CT scan, another MRI all before Monday.  I should know if I was chosen by Tuesday.  The trial are four pills I take along with the new chemo drug.  The pill would be an added bonus to the chemo with not many side effects.  My treatments will be 21 days apart again because this one will really hit my blood count low, so I need time to recover and bring my counts back to be treated again.  We are trying to just stop the growth and movement of the BUG, and then on to the next step.  I will know in about two months if this is working.  By this time the testing from my biopsy will give us more insight to help fight (and beat the crap out of) the BUG, because I am starting to get pissed!

I have to say there are so many layers to this that it's hard to see it all coming at you in the beginning.  The many, many tests, x-rays, scans, blood draws, surgeries, scopes, the insurance,(that blows through your money faster than you can imagine, everyday a bill in the mail, insurance covering less, and out of pocket more... Really!)

etc. never mind pain, coughing, and being tired from not enough oxygen.

I am not complaining, but must give a full picture, since remember I am at the begining of this battle.  Two good things, I can run my store from a far with the help of my awesome manager Maureen! I don't know what people do about work, since I have already been in this for 7 months. The other thing that helps me get through it all, is some people have to watch their small kids and young adults go thru this and much more, and the tons of elderly people that are there week after week.  So for that I can fight this as long as I don't have to watch my Mother (88) or my son go thru this week after week. 

Again thanks for the prayers cards and love, I am absorbing it all.

With all of you and the Lord by my side we will see miracles happen!!

GOD BLESS and HAPPY EASTER 

Update after Jan. 12 blood work

Courage is not the towering oak that

sees storms come and go;

            It is the fragile blossom

                        that opens in the snow.

                                                                                                                        a card sent by my friend Maddy..

Ok here is where I am....

I have not been working do to the constant coughing I have endured since Sept.. I have been resting and eating. Some very small good things due to the bug are, I have lost weight so I now must gain weight, REALLY who would have thought....and I am working on my 6 pack due to coughing its like doing a hundred sit ups a day and no fat to cover the muscle. 

I went in for my blood work yesterday, which needs to be checked between treatments to make all of your blood counts are good. All of mine checked out good. While I was there I talked to the nurse about my coughing and breathing problems, (which all along everyone had said I would have to live with until there is some shrinkage of the tumor) they prescribed a new cough medicine which knocked me out for about 15 hours but gave my lungs a rest. I also went for a chest x-ray to check for anything that might be brewing in there. I am hoping to work for a bit tomorrow.

P.S. Please try posting again, Megan has made it easier to leave comments.

Thanks for your love and prayers! xoxo